It’s time Canada had a system of care for people impacted by Parkinson’s

Wait times to diagnosis and access to multidisciplinary care are significant concerns in the Parkinson community. You have been telling Parkinson Canada, your current care team, and public healthcare agencies that these are priorities and your voice is being heard.

One in five Canadians with Parkinson’s wait more than a year to receive a formal diagnosis after first reporting their symptoms to a medical professional. The average wait time to see a Parkinson’s specialist is nearly a year; in some areas of the country, it’s more than two years. If you’ve been through it, you know. This wait delays potential treatments and therapies. It stalls the planning of families impacted by Parkinson’s, and it creates additional anxiety for the person receiving the diagnosis.

Parkinson’s is a highly complex disease that requires a range of therapies and approaches to manage symptoms. Although there are some models of care in parts of the country for Parkinson’s, there is no consistent approach to care.

How to Include Your Voice

No matter what, Parkinson Canada is committed to raising the voice of those affected by Parkinson’s. Together, we can call on our local government representatives for improved healthcare outcomes for the Canadian Parkinson community.

Engage with Your Local Representatives

Use our advocacy tools and templates below to send an email directly to the representatives in your riding.

Download the Election Toolkit

Although this toolkit was created for the 2021 Federal Election, there are great tips and tools included that will be helpful for year-round advocacy work.

Download now

Join the Parkinson Canada National Advocacy Webinar on December 1

National Advocacy Webinar

We heard from more than 150 community members from across the country during our Parkinson Canada Roundtable Series. From Newfoundland to Nunavut to Vancouver Island, we heard from people living with Parkinson’s and their care partners, regional community organizations, and a variety of researchers and healthcare professionals.

From these discussions, we’ve identified a crucial need for increased government support to address several areas of concern related to promoting earlier diagnosis and a better system of care with increased access for all Canadians. Some of these issues include reducing wait times for diagnosis, increasing access to multidisciplinary care, and facilitating the development of a comprehensive model for holistic care in Canada. These key recommendations and insights based on the roundtables will be included in a soon-to-be-released report.

This free webinar will discuss key findings from the roundtable series, as well as outline Parkinson Canada’s next steps and recommendations. Speakers will include Parkinson Canada staff members and community leaders with lived experience. Following the presentations there will be a Q&A portion.

This webinar will be offered in English with simultaneous French translation.

Full event details

Parkinson Canada Roundtables

We are committed to raising the voice of people affected by Parkinson’s through advocacy efforts focused on improving care. No matter what. With thanks to AbbVie Canada for supporting this initiative, we’re hosting a series of roundtables in the Summer and Fall of . They’ll involve leading movement disorder specialists, international experts and other key stakeholders, including, most importantly, people like you: Canadians living with Parkinson’s, to help further understand the access to care gaps and how to solve them.

After a series of roundtable meetings across the country, we plan to have tangible solutions for Parkinson Canada and our partners and advocates like you to bring to government to close these gaps in care for people in all stages of the disease.