Effective Date: September 14
Parkinson Canada’s mission is to transform the lives of People Living with Parkinson’s. We do this through funding research, advocacy and support for People Living with Parkinson’s.
1. Scope and Application
2. Definition of “Personal Information”
“Personal information” is any information that identifies, or could be reasonably associated with, an individual and their household (collectively, “individual” or “you”). This may include, for example, your name, contact information, email-address, and information relating to your application for employment or to volunteer at an event, your application for research funding, or your donation. It may also include other types of more technical information, but only when this information can identify you as an individual.
Information that is aggregated and/or de-identified and cannot be associated with an identifiable individual is not considered to be personal information.
3. What Personal Information do we Collect?
We limit the collection of personal information to what is reasonably required to fulfill the purposes for which it was collected.
Personal information we collect may include:
- Contact information, such as your name, email and postal addresses, or telephone number;
- Demographic information and interests, such as your age or date of birth, gender, occupation, schooling, languages, and types of activities you participate in;
- Health Information, such as your Parkinson’s diagnosis and/or other connections you may have to Parkinson’s;
- Information concerning services, such as services requested and/or received;
- Participation in Parkinson Canada activities, such as campaigns, events and other programs;
- Donation details, such as date of the gift, amount, and campaign to which one contributed;
- Transactional and other financial information, such as payment methods and preferences, billing and banking information (e.g., credit card number and expiry date or chequing account transit numbers which are required to process a donation);
- Browsing activity on our Websites, such as time and date of visit, browser and operating system used, pages viewed, clickstream data, account login events, opt-out preferences, and IP address if it can identify you as an individual;
- Geolocation information that may be collected when you use our Website, although this information may not identify you as an individual;
- Employment or volunteer application information, which may include some of the information described above, as well as letters of motivation and any additional information provided by you in the application form;
- Information pertaining to your grant applications and funded research, such as letters of intent, research proposals, curriculum vitae, letters of reference, descriptions of research and financial reporting;
- Other information you provide to us as further detailed in the How we Collect Personal Information section.
4. How we Collect Personal Information
We collect personal information in a variety of ways, including: directly from you, from other sources, through online technologies (such as when you are interacting with us through our Website) and from third-party social networks.
We collect personal information in the following ways:
We may also analyze or combine this information with other information, such as your donation or funding application history. We do this to support our understanding of donors, funding recipients, visitors to our Website and other individuals who interact or communicate with us. To learn more about the privacy choices available to you, please see Your Privacy Choices.
The technologies we use include:
- Cookies, which are small text files that are saved on your computer when you visit a website so that information can be saved between visits, such as your login credentials or language preferences. For example, cookies allow you to log in quickly when you visit our Website.
- Web beacons and pixels, techniques used to track who is visiting a web page or has opened an e-mail. This allows us to understand your online behaviour, monitor our email delivery, and provide you with interest-based advertising. These tools also allow our third-party tracking tools to gather information, such as your IP address, and provide this back to us in an anonymized, aggregate form (i.e. in a manner that prevents us from identifying you personally).
You may delete or disable certain of these technologies at any time via your browser. However, if you do so, you may not be able to use some of the features on our Website.
To learn more about the privacy choices available to you, please see Your Privacy Choices.
5. How we Use Personal Information
We may use all categories of personal information detailed in section 3 to provide you with services, to manage our operations, to communicate offers and information we think might interest you, to generally enhance your experience with us, and as otherwise permitted or required by law.
Learn more about how we use your personal information for: providing services, managing our operations, marketing, and conducting research and data analytics.
We use your personal information for the following purposes:
- Fundraising, including donor engagement and tailoring your experience as a Parkinson Canada donor;
- Processing your transactions and providing charitable tax receipts;
- Verifying your identity;
- Enabling your participation in programs;
- Responding to your inquiries;
- Creating, administering, and maintaining your records or your account with us in relation to services we provide.
- Notifying you of changes to your account or our Website services, terms, conditions or policies and to provide you administrative messages, updates, legal notices, technical notices or security alerts;
- Deploying and managing our information technology applications and systems, including managing our Website, which may include using cookies and other similar technology (as further detailed in the How we Collect Personal Information section);
- Managing and deploying our web and social media campaigns;
- Maintaining the security of the public, our users and our employees;
- Protecting ourselves and third parties from errors and fraud;
- Maintaining our services;
- Processing your application for research funding, for services, or for employment or volunteer work; and
- Meeting our contractual, legal and regulatory obligations.
If you no longer wish to receive commercial electronic messages, please let us know by following the unsubscribe directions provided in every commercial electronic message. For more information on managing your marketing preferences, please see Your Privacy Choices.
- Managing and improving our operations and developing new services;
- Understanding our donors’ interests and priorities and tailoring our fundraising activities;
- Monitoring the progress and expenses of funded research;
- Measuring the effectiveness of our programs, fundraising activities, and marketing; and
- Understanding how visitors interact with our Website and ensuring it works correctly.
When possible, we will use your information in an aggregated and/or de-identified format.
6. How we Share Personal Information
With your consent, we may sell your personal information (including name and contact information) as part of a fundraising list to a third-party organization.
Learn more about how we may share personal information: with third parties, with service providers, in the course of a transfer of operations, for other permitted reasons, and with your consent.
Some information you share on our Website, namely event transactions and registrations, is processed through Blackbaud Luminate Online. As with many of our other service providers, Blackbaud maintains its own information processing platform where it processes information on our behalf. You can learn more about Blackbaud’s security and information handling practices here (including PCI compliant payment processing) and here.
7. Third Parties
Third parties that you connect with directly through hyperlinks or other information provided on our website may link and combine information about you to other personal information they may have collected on you, to achieve their own goals and purposes. We do not collect, use or disclose such information, which is subject to the privacy policies of the third party organization. Parkinson Canada encourages you to review the privacy policies of such organizations as well.
8. How we Manage Consent
If you choose not to provide us with certain personal information or if you withdraw your consent, where such withdrawal is available, we may not be able to offer you the programs, opportunities to donate, services or information that you requested or that could be offered to you.
9. Your Privacy Choices
We want you to clearly understand your choices and make informed decisions about your privacy options. There are several options available for you to manage your privacy preferences, including by contacting us directly, changing your browser settings and using third party functionality.
Please note that, as a registered charity, we may be exempt from applicable laws governing the transmission of electronic messaging for certain message content or certain circumstances, and otherwise may also have your implied consent to send you such electronic communications under applicable laws.
You may opt out of receiving email communications by using the unsubscribe method provided within emails you receive, or by contacting us by email or telephone at the coordinates provided in the “Who Can You Contact With Privacy Questions?” section.
Please note the following regarding withdrawal of consent or changes in your privacy preferences:
- Even if you have opted out of receiving marketing communications from us, we may still contact you for transactional purposes, in compliance with applicable laws (e.g., for customer service, information regarding the status of your grant application or other program information, or service or reminder notices). We may also need to contact you with questions or information regarding your service inquiries; and
- It may take some time for all of our records to reflect changes in your preferences (e.g., if you request that you not receive campaign or marketing communications from Parkinson Canada, your preference may not be captured for a campaign already in progress).
However, if you do so, you may not be able to use some of the features of our Website.
Please refer to your browser instructions or help screen to learn more about how to block, delete and manage cookies and other technologies on your computer or mobile device.
You can also opt-out of the use of your information for targeted advertising (by participating advertisers) by visiting this site.
10. How we Safeguard Personal Information
We employ organizational, physical and technological measures to protect the confidentiality of personal information and to safeguard personal information against loss or theft, as well as unauthorized access, disclosure, copying, use or modification, in light of, among other things, the sensitivity of the information and the purposes for which it is to be used.
We will store your personal information for as long as necessary to fulfill the purposes for which it was collected, except where otherwise required or permitted by law. Once no longer required, your personal information will be securely destroyed or anonymized (so that the information no longer identifies you).
We will take all reasonable steps required by law to notify you in the event of unauthorized access of your personal information.
11. Where we Keep Personal Information and Cross-border Transfers
We may store personal information within Canada or the United States. Some of our service providers may also access, process or store your personal information outside of the country where you reside. We use reasonable safeguards to ensure that our service providers protect your personal information wherever it is used or stored.
As a result, when your personal information is used or stored in a jurisdiction other than where you are residing, it may be subject to the law of that foreign jurisdiction, including any law permitting or requiring disclosure of the information to the government, government agencies, courts and law enforcement in that jurisdiction.
12. Accessing and Correcting Your Personal Information
You may have the right to access and rectify the personal information we hold about you under the law applicable in the jurisdiction where you reside. In this case, upon request, we will provide you with access to your personal information within a reasonable timeframe, in compliance with applicable laws. It is your responsibility to provide accurate, correct and complete information.
You can request access or rectification by contacting the Privacy Office as described in the Who Can You Contact With Privacy Questions? section.
We do not knowingly request or collect personal information from children under 13 years of age without prior verifiable consent of his or her parent or legal guardian and complying with any other legal requirements. If we become aware that we have unknowingly collected personal information about a child without verifiable parental or legal guardian consent, we will delete this information from our records or take reasonable available steps to de-identify the information.
15. Whom Do I Contact With Privacy Questions?
If you have any questions about how we handle your personal information, please contact us as indicated below. Our Privacy Officer is also our designated contact for your inquiries or complaints under PIPEDA (The Personal Information Protection and Electronic Documents Act, SC 2000, c 5). If you are participating in a program, event, fundraising initiative, competition or survey that is offered by us jointly with a third party, the third party may hold your personal information. If you have any questions or concerns, we will direct you to the appropriate party so that you may make enquiries as to that party’s privacy policies and practices.Privacy Officer