In an effort to maintain appropriate standards of care in managing personal information, Parkinson Canada commits to the Canadian Standards Association’s Model Code for the Protection of Personal Information (CAN/CSA-Q830-96). Parkinson Canada complies with all provincial and federal legislation.
Parkinson Canada is responsible for the protection of your personal information collected through all channels. This responsibility extends when personal information is transferred to or collected by third parties on our behalf.
2. Identifying purposes
Before we collect any personal information from you, we will identify the purpose for the collection. A statement of purposes will be communicated wherever possible.
We will only collect personal information with your knowledge and consent, except in limited situations as permitted by law. This may be with your express consent (for example, where you voluntarily provide information on a form for purposes you clearly understand and agree to) or by declining an opportunity to opt-out of our collection or use of your personal information. Opt-out consent will be used only for non-sensitive information where we believe that the privacy impacts are low and you will be provided with sufficient notice of your right to opt-out of such uses. Further, you can withdraw your consent to the collection, use or disclosure of your personal information at any time, subject to any legal requirements and reasonable notice(see 3.1).
4. Limiting collection
We only collect personal information relevant to the purposes that have been identified. We collect information fairly and lawfully, and directly from individuals wherever possible (see 4.1 and 4.2). You have the right to provide as much, or as little personal
information as you choose to share.
Personal and health information collected
To achieve its mission, Parkinson Canada collects certain personal information about donors, clients, event participants staff, volunteers and other stakeholders meeting legal obligations and as otherwise permitted or required by law. Such information enables Parkinson Canada to deliver programs and services, pursue public affairs and advocacy initiatives, fundraise, conduct marketing efforts and undertake statistical reporting.
Parkinson Canada collects the minimum amount of information needed to establish and maintain a service, volunteer, participant, donor or program relationship with an individual. Parkinson Canada is not a healthcare custodian by law, but all personal health information collected is stored in accordance with provincial and federal legislation. Personal information collected by Parkinson Canada may include, but is not limited to:
- Contact and identification information
- Parkinson’s Diagnosis and connection to Parkinson’s
- A brief summary of the service requested and/or received (stored separately in an information and referral database)
- Participation in Parkinson Canada campaigns, events and other programs
- Donation details, such as date of the gift, amount, and campaign to which one contributed
- Financial information such as payment methods and preferences, billing and banking information (credit card number and expiry date or chequing account transit numbers which are required to process a donation). To the extent that Parkinson Canada saves any of this information, it is encrypted and access to this information is strictly restricted.
- Other personal information used for purposes that a reasonable person would consider appropriate in the circumstances.
5. Limiting use, disclosure and retention
We only use or disclose your personal information for the purposes we have identified to you.
Other than fundraising lists, virtually all of the personal information that we collect comes directly from individuals themselves. We generally assume this information to be accurate and complete, unless we are informed otherwise.
Parkinson Canada uses appropriate safeguards to protect all personal information in its custody and control. Some information you share on parkinson.ca and related domains is processed by a third-party platform, namely event transactions and registrations through Blackbaud Luminate Online. Interactions with Blackbaud are governed by Blackbaud’s security (including PCI compliant payment processing) and privacy policies.
We are open about our policies and procedures. We make reasonable efforts to inform
individuals about our policies and procedures, the purposes for which we collect, use or
disclose personal information, and how to access your personal information.
9. Individual access
Upon request, we will inform you if we hold any personal information about you and provide you with access to this information. If we have any personal information about you, we will also tell you for what purposes it is used or disclosed. You have a right to update any personal information that we hold on you. Should you wish to see the full contents of an information file, you must make a formal written request and mail it to:Privacy Officer
316 – 4211 Yonge Street
North York, ON M2P 2A9
10. Challenging compliance
Parkinson Canada Website Privacy
1. Website usage tracking
Our websites may automatically record some general information about your visit in order for Parkinson Canada to engage in web statistical analysis using Google Analytics. We want to make sure our sites are useful to visitors and make the most efficient use of donor dollars in our marketing efforts through targeted advertising. This information may include the:
- internet domain for your internet service provider, such as “company.com” or “service.ca” and the IP address of the computer you are using to access Parkinson Canada’s website;
- type of browser you are using, such as Internet Explorer, Firefox or Chrome;
- type of operating system you are using such as Windows or Macintosh;
- date and time of the visit to our site, the pages of our site that were visited, and the address of the previous website you were visiting if you linked to us from another website;
- age category, gender, and affinity interests as determined by demographic and interest reports available through Google Analytics.
We also use “cookies” that identify you as a return visitor and which can help us tailor information to suit your individual preferences. A cookie is a small text file that a website can send to your browser, which may then store the cookie on your hard drive. The goal is to save you time next time you visit, provide you with a more meaningful visit, and measure website activity. Cookies in and of themselves cannot be used to reveal your identity. Many browsers, however, allow you to disable cookie collection if you wish, or inform you when a cookie is being stored on your hard drive.
3. Targeted advertising
4. Third-party social media
Parkinson Canada’s use of social media serves as an extension of its presence on the internet. Social media accounts are public and are not hosted on Parkinson Canada’s servers. Users who choose to interact with Parkinson Canada via social media should read the terms of service and privacy policies of these third-party service providers and those of any applications used to access them.