Across Canada, more than 120,000 people are living with Parkinson’s—a number expected to reach 150,000 by 2034. Yet too many people still encounter delays, missed symptoms, or care shaped by geography rather than need. David’s story shows how easily early signs can be overlooked—and how much persistence is required to reach the specialized care that can significantly improve the quality of someone’s life.

David’s story 

My name is David Walker. I’m 76 and split my time between Coquitlam and Mexico with my wife, Janet, staying close to our kids, grandkids, and soon, our first great‑grandchild. For 47 years, I worked in humanitarian and charitable organizations, traveling to more than 100 countries. Outside of work, I was equally driven, competing in Masters Track and Field, cycling long distances for charity, and even completing an Ironman at 70. I’ve always lived life on a big stage, embracing meaningful change.

The first symptoms

Before my diagnosis, my understanding of Parkinson’s came mostly from media portrayals of tremors and Michael J. Fox. I first noticed something was wrong during dinner with friends when my hand shook as I lifted my fork. Around the same time, a coach pointed out that I wasn’t swinging my arm while running—something I hadn’t realized myself.

“I first noticed something was wrong during dinner with friends when my hand shook as I lifted my fork.”

When access to vital care is anything but simple 

For several months, I was in denial. Eventually, in 2022, I spoke with my family doctor through a virtual appointment while I was in Mexico. The physician wasn’t a movement disorder specialist and initially considered prescribing something to calm me down, rather than exploring Parkinson’s as a possibility. I left the appointment knowing I needed a more thorough assessment, but that meant waiting until I returned to Vancouver.

When I was finally seen at UBC Hospital and received a formal assessment, I felt grateful for the expertise I received, but I also recognized how easily this could have unfolded differently for me. If I hadn’t pushed for further assessment, or if travel wasn’t an option, I could have faced much longer delays.

When they confirmed I had Parkinson’s, I wasn’t shocked, but hearing it brought both sadness and relief. That earlier period of uncertainty was deeply unsettling. Living with Parkinson’s means planning around stiffness, fatigue, and sleep challenges. I often wake up early and can’t fall back asleep, so I use those quiet hours for creative work. I take medications like clockwork, rest when needed, and sometimes use a cane in the evenings. Changes in my facial expression can cause people to misread my mood, so I’ve learned the importance of patience, self‑awareness, and surrounding myself with empathetic people.

“When they confirmed I had Parkinson’s, I wasn’t shocked, but hearing it brought both sadness and relief.”

My creativity has expanded—I sketch, write poetry and short stories, and recently completed a philosophy degree. And I’ve adopted a rescue dog, Lulu, who’s woven into my daily routine. When my medication alarm sounds, she jumps and twirls until I take my dose, helping me stay consistent and adding joy along the way.

How I’m moving forward 

I’m sharing my story because raising awareness helps break stereotypes and reminds others that people living with Parkinson’s are still fully ourselves. I’ve stepped back from some athletic goals, but I stay active and engaged in new ways. If I could offer one piece of advice to someone newly diagnosed, it would be to connect with another person living with Parkinson’s who meets the condition with openness—you don’t have to navigate this alone. 

This August, David is taking on the T100 triathlon one more time—using his journey to raise awareness and funds for Parkinson’s. Learn more and support his efforts here.

This story is shared thanks to the courage and dedication of David Walker.  

Limitless Parkinson’s care 

David’s story shows the real impact of delays—from the uncertainty before diagnosis to the ongoing need for steady support as symptoms evolve. No one should have to navigate referrals, geography, or guesswork just to access care that shapes their daily life. Limitless Parkinson’s care means timely diagnosis, consistent access to specialists, and the chance for more people to experience the meaningful improvement in quality of life that David has found. 

Join the movement for timely, equitable Parkinson’s care. Visit www.parkinson.ca/PAM