How to tell people

Sharing the news: talking about your Parkinson’s diagnosis

Sharing with Family

Partner/Spouse 

Many people receive their Parkinson’s diagnosis with their partner sitting next to them; however, for those whose partner isn’t there, it’s important to tell them in a timely manner so that you can plan to move forward together. Even if you want to protect them from the truth or you’re worried about how things might change, being open with them is critical. You and your partner can grow to understand Parkinson’s by asking questions and seeking information together. Your partner or significant other may also have pertinent questions that you haven’t thought of or offer a different perspective that can help you see your diagnosis in a new way. 

Children 

One common Parkinson’s challenge for people with children is deciding when and how to share the news of your diagnosis. The way you share your diagnosis with your children will vary based on their age and maturity level. No one knows your children better than you do; so, you probably know what they can and can’t handle. With children of all ages, take time to check in with them about what they’re thinking and feeling. Giving them opportunities to put their concerns into words can help them make sense of their feelings and allow for a more open and honest dialogue. 

Telling Friends

After a Parkinson’s diagnosis, many people wonder when to tell their friends and how it might change those relationships. While some people may feel tempted to retreat and keep to themselves rather than confiding in friends, social isolation is not the answer. While it’s important to give yourself time before telling your friends that Parkinson’s is now one part of your life, remember and remind them that it is just one part. Keep taking part in the activities and get-togethers you enjoyed before diagnosis. Be patient when friends ask questions and designate “Parkinson’s-free zones” if doing so helps you feel more comfortable when with friends. 

Blake’s Story 

“I went to my doctor and I was shaking. He said, “you need to see a neurologist.” So, I got an appointment with a neurologist and he told me I had Parkinson’s disease. 

At first, I thought “that can’t happen to me. It happens to other people.” That’s how I spent the first few years, in denial. 

Then, I started living a more active lifestyle and exercising. I also started reaching out to others. Sharing and talking with other people that were going through what I was helped. I reached out to Parkinson Canada and registered for Parkinson Canada SuperWalk. I posted on my Facebook asking for donations and told people about my diagnosis. Participating, and sharing, became part of my healing. 

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