Vandana’s Perspective:

Life with Parkinson’s is a journey—one that my family and I are navigating together. My name is Vandana Hiremath, but most people call me Sudha. I was diagnosed with young-onset Parkinson’s at just 24, shortly after my first son was born. At first, I brushed off my symptoms—balance issues, tremors, muscle rigidity—as post-pregnancy changes. But during a trip to India, my condition worsened, and a neurologist confirmed what I never expected: I had Parkinson’s.

Returning to Canada, we saw a specialist at Credit Valley Hospital who ran genetic tests, confirming my diagnosis. It was overwhelming—there were days when I’d fall and struggle to get up, all while caring for a newborn. Mahesh, my husband, had to take time off work to support me. It wasn’t easy, but we adapted. Now, I take my medication every three hours, and we’ve built a routine that keeps our family moving forward.

Despite the challenges, we made the decision to have our second son after genetic testing reassured us that Parkinson’s wouldn’t be passed on. He’s a handful, but we wouldn’t have it any other way! Our older son is incredibly caring—he can tell when I need my medication and brings it to me without being asked. Our younger one is still too young to fully understand, but he’s learning in his own way.

I work from home while Mahesh works full-time outside the house. He takes care of the morning routine, makes breakfast, and takes over in the evenings. Our boys are growing up with an incredible sense of responsibility and care. Mahesh reminds me often: “You’re not alone.” And that’s something I hold onto every day.

Parkinson Canada has been a great source of support. We found them online and started attending meetings where we connected with others going through similar experiences. Last year, we joined the Parkinson Canada SuperWalk as a family—it was an amazing experience, reminding us that we are part of a bigger community.

If I could give one piece of advice, it would be this: take things as they come. Stay on top of your medication, exercise regularly, and maintain a healthy diet. But most importantly—go with the flow.

Mahesh’s Perspective:

Being a care partner is about showing up, every single day. When Vandana was diagnosed, I knew we were in this together. My advice to other partners and caregivers is simple: be there 100%. Open communication is key—not just between us, but with our kids and extended family.

No one should feel like they have to face this alone. Parkinson Canada has incredible resources, and finding a support system makes all the difference.

For us, Parkinson’s is just one part of our story. We’re still raising our boys, laughing together, and making memories as a family. And that’s what matters most.