As some provinces observe Family Day, it’s a time to recognize the strength and resilience of families coping with Parkinson’s. From financial strains to emotional challenges, navigating life with Parkinson’s requires a collective effort from loved ones and the greater community. Let’s acknowledge the profound impact and the importance of supporting one another through each step.
Share the diagnosis
When sharing the diagnosis of Parkinson’s with family members, do so as soon as possible to alleviate worries and concerns. Open communication fosters understanding and helps in adapting to the changes that come with Parkinson’s. Effective communication allows for discussions about feelings of anxiety, stress, or low self-esteem related to the condition. Sharing these feelings with loved ones or seeking support from others, including healthcare professionals, can promote healthy emotional well-being.
Ease financial stress
Financial burdens associated with Parkinson’s can be overwhelming, including medical expenses, caregiving costs and potential loss of income. Engage in open discussions about expenses, insurance coverage, and long-term care planning. Planning early provides more options to navigate challenges with greater confidence and peace of mind.
Ensure the best care
Seeking advice from medical professionals and therapists is crucial. With Parkinson Canada’s CareFinder, an intuitive online tool and user-friendly directory, individuals can seamlessly connect with tailored support based on their location. Whether seeking specialized movement disorder specialists or essential wellness programs, CareFinder offers a comprehensive platform to access the necessary support for enhancing patients’ quality of life. Acting promptly is key, as early access to interventions can significantly influence the disease’s progression. Proactive healthcare planning ensures better management of Parkinson’s and a higher quality of life.
Keep physically and mentally active
Encouraging physical, social, and mental activities is essential for promoting overall well-being. Isolation and inactivity can worsen Parkinson’s symptoms, emphasizing the need to stay engaged and motivated. Families can focus on healthy living, including dietary improvements, stress reduction techniques, and lifestyle changes that benefit everyone. A great place to explore Parkinson Canada programs and events near you to stay engaged and connected with the Parkinson’s community. Participating in programs and events can provide valuable support, resources and opportunities for social interaction.
Stay positive and calm
Parkinson’s can impact mental health, with symptoms like apathy, anxiety and depression. Maintaining a positive outlook is vital for both the patient and their family. Caregivers often experience overwhelming fatigue, highlighting the importance of self-care and community support. While optimism is beneficial, it’s also essential to acknowledge the realities of the situation. Seeking counselling or therapy can be beneficial if family relationships become strained or children struggle to cope.
The reality for people facing a Parkinson’s diagnosis is that many aspects of their lives will be disrupted. Currently, 100,000 Canadians are living with Parkinson’s, and that number continues to grow. Caring for a loved one with Parkinson’s can strengthen family bonds and provide opportunities for closer relationships. Remember, no one is alone in a journey with Parkinson’s. The Parkinson Canada Information and Referral Helpline is a toll-free Canada-wide number for people living with Parkinson’s, their caregivers, and healthcare professionals. Here, you can find free and confidential non-medical information and referral services. When you have questions or need assistance, our referral staff is happy to help connect you with resources, community programs, and services that can support you.
For more information on support groups or navigating Parkinson’s, visit: https://www.parkinson.ca/resources/support-groups/