Advocacy reports

Parkinson Canada’s advocacy reports provide evidence and context for the issues the Parkinson’s community faces. Whether it be their ability to access care, the personal experiences of those with Parkinson’s or the impact of Parkinson’s on the Canadian economy, these insights are all shared here. These reports are critical not only to raising awareness but also play an important role in helping to form our advocacy priorities. 

Our Roundtable Reports capture the outcomes of 8 regional and 1 national roundtable that brought together more than 150 voices from across Canada. Participants included people living with Parkinson’s, care partners, health professionals, and regional organizations.

The goal was to listen to real experiences, identify unmet needs, and highlight the key issues shaping Parkinson’s care across provincial, territorial, and national perspectives. These insights now guide Parkinson Canada’s advocacy work.

The Economic Burden of Parkinson’s in Canada report reveals the staggering financial costs of living with Parkinson’s on individuals, families, and the healthcare system. Parkinson’s is not only a medical condition; it’s also a financial crisis for thousands of Canadians.

Through this research, we amplify the stories we hear every day from our community about the insurmountable financial challenges they face. These findings fuel our fight for better support and policy change.

The Care Pathways Report outlines the ideal healthcare journey for someone living with Parkinson’s and how our current system measures up. It identifies the essential markers of quality care that help people live well with Parkinson’s and highlights where improvements are urgently needed.

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