Empowered care

A Parkinson’s diagnosis can be overwhelming, but for many people the hardest part is the long wait for answers and the struggle to reach specialized care. More than 120,000 people in Canada are living with Parkinson’s today, with that number expected to rise to 150,000 by 2034. Even as people track symptoms, attend appointments, and search for support, too many still find that access to care depends on where they live or what services are available—challenges Dr. Sarah Lidstone sees every day in her work.

…too many still find that access to care depends on where they live or what services are available

Dr. Sarah Lidstone’s story  

My name is Dr. Sarah Lidstone. I’m a neurologist, scientist, and movement disorder specialist. When I meet people with Parkinson’s, they’re often living with fear of the unknown. In those first conversations, we talk about how medication is essential—but never the whole story. My focus is on care tailored to each person’s interests and abilities—a holistic approach that brings together physiotherapy, speech‑language pathology, exercise, and other practical tools that help people live well with Parkinson’s.

The gap in care 

The pathway to the right Parkinson’s care can often feel like a maze, especially for those whose first symptoms don’t look “typical.” Someone may be treated for depression, a frozen shoulder, pain, or repeated muscle strain for years, jumping between appointments without anyone ever connecting the dots.

When I’m finally able to offer a clear diagnosis and plan, I typically see the same response: relief, not because Parkinson’s is easy to hear, but because they finally have a name for what’s happening and a clear action plan for what to do next.

A model built on connection and empowerment 

Through my work with Parkinson Canada, I’m helping explore a new clinic model that connects people who are newly diagnosed with a specialized assessment and a clear action plan. During a one‑time visit, we look at the whole person and offer recommendations on medication, rehabilitation, community‑based support, and lifestyle factors that may help them live well. Their primary care provider continues their care locally, supported by specialist guidance when needed, and we connect patients with Parkinson Canada for education, resources, and community support.

This story is shared thanks to the dedication of Dr. Sarah Lidstone. 

Breaking down barriers together

Dr. Lidstone’s perspective shows how much people carry while waiting for answers—and how transformative, timely, coordinated care can be. Limitless Parkinson’s care means building a system where the right support reaches people when they need it, no matter where they live, and where no one is left navigating uncertainty alone. Together, we can break down the barriers that stand between people and the care they deserve.

Help expand care models that deliver answers sooner and support people faster. Visit www.parkinson.ca/PAM