Lloyd is an active volunteer with Parkinson Canada and has participated in several Parkinson\u2019s research studies.<\/p>\n\n\n\n
Over the course of his career, Lloyd was a member of an institution\u2010wide patient advisory committee, program\u2010focused community advisory committee and a family advisory committee. Since retiring in 2014, Lloyd has been a member of Parkinson Canada\u2019s government relations advocacy committee and Ontario advisory committee and Eastern Ontario\u2019s Parkinson advisory committee. He was also a board member and chair of the governance committee for the Champlain Hospice Palliative Care Program.<\/p>\n\n\n\n
Lloyd has worked with vulnerable populations his entire career \u2013 people who have suffered a brain injury, spinal cord injury, stroke, severe accidents, amputations, etc. He has also coached, officiated and organized wheelchair sports and most recently volunteered with adults with developmental disabilities in a pool program.<\/p>\n\n\n\n
Including the perspective and voice of those with Parkinson\u2019s strengthens the planning, strategy and evaluation of the ongoing work of finding a cure, improving care and supporting individuals. The PAC will provide this opportunity and I look forward to contributing to this work.<\/p>\n\n\n\n
There is hope in research of new drugs, use of technologies in care, and in understanding the neurophysiology of Parkinson\u2019s. Therefore, it is important to not give up or give in to the disease, but to get up and get on with life.<\/p>\n\n\n\n
While all of Parkinson Canada\u2019s work is valuable, it is the only organization that advocates nationally for all Canadians with Parkinson\u2019s and their caregivers. For this reason, I most value its advocacy work \u2013 with access to new medications and technologies, for improved access to Movement Disorder Specialists and interdisciplinary care, and for raising awareness of the needs of people with Parkinson\u2019s.<\/p>\n\n\n\n
Lloyd est un b\u00e9n\u00e9vole actif aupr\u00e8s de Parkinson Canada et a particip\u00e9 \u00e0 plusieurs \u00e9tudes de recherche sur la maladie de Parkinson.<\/p>\n\n\n\n
Au cours de sa carri\u00e8re, Lloyd a \u00e9t\u00e9 membre d’un comit\u00e9 consultatif de patients \u00e0 l’\u00e9chelle de l’\u00e9tablissement, d’un comit\u00e9 consultatif communautaire ax\u00e9 sur les programmes et d’un comit\u00e9 consultatif de familles. Depuis qu’il a pris sa retraite en 2014, Lloyd est membre du comit\u00e9 de d\u00e9fense des relations avec le gouvernement et du comit\u00e9 consultatif de l’Ontario de Parkinson Canada, ainsi que du comit\u00e9 consultatif de l’Est de l’Ontario sur la maladie de Parkinson. Il a \u00e9galement \u00e9t\u00e9 membre du conseil d’administration et pr\u00e9sident du comit\u00e9 de gouvernance du programme de soins palliatifs de Champlain Hospice.<\/p>\n\n\n\n
Tout au long de sa carri\u00e8re, Lloyd a travaill\u00e9 avec des populations vuln\u00e9rables – des personnes ayant subi une l\u00e9sion c\u00e9r\u00e9brale, une l\u00e9sion de la moelle \u00e9pini\u00e8re, un accident vasculaire c\u00e9r\u00e9bral, des accidents graves, des amputations, etc. Il a \u00e9galement entra\u00een\u00e9, arbitr\u00e9 et organis\u00e9 des sports en fauteuil roulant et, plus r\u00e9cemment, il a fait du b\u00e9n\u00e9volat aupr\u00e8s d’adultes souffrant de troubles du d\u00e9veloppement dans le cadre d’un programme de piscine.<\/p>\n\n\n\n
Le fait d’inclure le point de vue et la voix des personnes atteintes de la maladie de Parkinson renforce la planification, la strat\u00e9gie et l’\u00e9valuation du travail continu de recherche d’un rem\u00e8de, d’am\u00e9lioration des soins et de soutien aux personnes. Le CCP offrira cette possibilit\u00e9 et je me r\u00e9jouis de contribuer \u00e0 ce travail.<\/p>\n\n\n\n
La recherche de nouveaux m\u00e9dicaments, l’utilisation des technologies dans les soins et la compr\u00e9hension de la neurophysiologie de la maladie de Parkinson sont porteuses d’espoir. Il est donc important de ne pas abandonner ou c\u00e9der \u00e0 la maladie, mais de se lever et de continuer \u00e0 vivre.<\/p>\n\n\n\n
Bien que tout le travail de Parkinson Canada soit pr\u00e9cieux, c’est la seule organisation qui d\u00e9fend \u00e0 l’\u00e9chelle nationale les int\u00e9r\u00eats de tous les Canadiens atteints de la maladie de Parkinson et de leurs aidants. C’est pour cette raison que j’appr\u00e9cie le plus son travail de d\u00e9fense des droits – pour l’acc\u00e8s aux nouveaux m\u00e9dicaments et aux nouvelles technologies, pour l’am\u00e9lioration de l’acc\u00e8s aux sp\u00e9cialistes des troubles du mouvement et aux soins interdisciplinaires, et pour la sensibilisation aux besoins des personnes atteintes de la maladie de Parkinson.<\/p>\n","protected":false},"author":90,"template":"","class_list":["post-47688","profile","type-profile","status-publish","has-post-thumbnail","hentry"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/www.parkinson.ca\/fr\/wp-json\/wp\/v2\/profile\/47688","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.parkinson.ca\/fr\/wp-json\/wp\/v2\/profile"}],"about":[{"href":"https:\/\/www.parkinson.ca\/fr\/wp-json\/wp\/v2\/types\/profile"}],"author":[{"embeddable":true,"href":"https:\/\/www.parkinson.ca\/fr\/wp-json\/wp\/v2\/users\/90"}],"version-history":[{"count":2,"href":"https:\/\/www.parkinson.ca\/fr\/wp-json\/wp\/v2\/profile\/47688\/revisions"}],"predecessor-version":[{"id":48741,"href":"https:\/\/www.parkinson.ca\/fr\/wp-json\/wp\/v2\/profile\/47688\/revisions\/48741"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.parkinson.ca\/fr\/wp-json\/wp\/v2\/media\/47691"}],"wp:attachment":[{"href":"https:\/\/www.parkinson.ca\/fr\/wp-json\/wp\/v2\/media?parent=47688"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}