It’s time Canada had a system of care for people impacted by Parkinson’s
Wait times to diagnosis and access to multidisciplinary care are significant concerns in the Parkinson Community. You have been telling Parkinson Canada, your current care team, and public healthcare agencies that these are priorities and your voice is being heard.
One in five Canadians with Parkinson’s wait more than a year to receive a formal diagnosis after first reporting their symptoms to a medical professional. The average wait time to see a Parkinson’s specialist is nearly a year; in some areas of the country, it’s more than two years. If you’ve been through it, you know. This wait delays potential treatments and therapies. It stalls the planning of families impacted by Parkinson’s, and it creates additional anxiety for the person receiving the diagnosis.
Parkinson’s is a highly complex disease that requires a range of therapies and approaches to manage symptoms. Although there are some models of care in parts of the country for Parkinson’s, there is no consistent approach to care.
How to Include Your Voice
No matter what, Parkinson Canada is committed to raising the voice of those affected by Parkinson’s. Together, we can call on our electoral candidates for improved healthcare outcomes for the Canadian Parkinson community.
Engage with Your Candidates
Use our election advocacy tools and templates below to send an email directly to your candidates; engage with them on twitter; or sign our petition for better access to care.
Download the Election Toolkit
Speakers included Parkinson Canada staff members and community leaders with lived experience. Following the presentations, there was a live Q&A portion that gave participants the opportunity to ask questions around how you can meaningfully engage in this federal election.
Parkinson Canada Roundtables
We are committed to raising the voice of people affected by Parkinson’s through advocacy efforts focused on improving care. No matter what. With thanks to AbbVie Canada for supporting this initiative, we’re hosting a series of roundtables in August and September 2021. They’ll involve leading movement disorder specialists, international experts and other key stakeholders, including, most importantly, people like you: Canadians living with Parkinson’s, to help further understand the access to care gaps and how to solve them.
After a series of roundtable meetings across the country, we plan to have tangible solutions for Parkinson Canada and our partners and advocates like you to bring to government to close these gaps in care for people in all stages of the disease.