Advocacy News Archives

Thanks to our Ambassadors, we've achieved incredible results in 2015 - More >>

December 2015 - Rotigotine patch for Parkinson's receives recommendation from Government of Canada - More >> 

August 2015 - Caregiving issues elevated in federal election campaign - Recently, caregiving issues were highlighted during the federal election campaign. The Liberal Party of Canada announced its intention to expand the Employment Insurance Compassionate Care Benefit to include those who support loved ones with serious illnesses and to also accommodate the episodic needs of caregivers. Currently, this benefit only provides EI to those caring for loved ones who are dying. This announcement builds off the recent expansion of the Compassionate Caregiver Benefit from 6 week to 6 months as stated in the 2015 budget and is fully in-line with Parkinson Canada's pre-budget submission. Given that getting an end of life diagnosis for those with Parkinson's is often very difficult, these new measures will increase the Parkinson's community access to the Compassionate Care Benefit. When speaking to a Liberal candidate on the campaign trail, be sure to thank them for making caregivers a priority. When speaking with candidates from the other parties, ask if they will provide meaningful caregiver support by extending the Compassionate Care Benefit to include caregivers of loved ones with serious chronic or episodic medical conditions. For more information, please see the joint news release of Canadian Caregiver Coalition, Health Charities Coalition of Canada and Neurological Health Charities Canada. Parkinson Canada is an active member of all three national coalitions.

August 2015 - Make Seniors Care a ballot Issue in the Upcoming Federal Election - The Canadian Medical Association (CMA), in conjunction with an alliance of partner organizations (the Alliance) including Parkinson Canada, have launched, a campaign to build a community of support for a National Seniors Strategy and make seniors care a major issue in the upcoming federal election. - More >>

June 2015 - Parkinson Canada submits second Patient Evidence Submission on Rotigotine patch - More >>

May 2015 - Parkinson Ambassadors needed in your riding! Parkinson Canada is currently recruiting representatives from federal ridings across Canada to join our National Advocacy Network as Parkinson's Ambassadors. We are looking for motivated individuals to help move Parkinson's issues forward in the 2015 election and beyond. Click here to read more.

April 2015 - Senator Judith Seidman delivering a statement in the Senate on Parkinson Awareness Month. Click here to listen to the statement.

April 2015 - Extension of the Compassionate Care Benefit for Caregivers, boosts in saving mechanisms for seniors, and increased research funding - More >>

March 2015 - Rick Dykstra, Conservative MP for St. Catharines delivering a statement in the House in recognition of Parkinson's Awareness & Parkinson Canada's 50th Anniversary. Click here to view the statement.

March 2015 - Parkinson Canada's 2015 Day on the Hill - More >>

March 2015 - Government takes a big step forward to address the needs of the Parkinson's Community. More >>

January 2015 - Genetic Fairness Update: Response to the Canadian Life and Health Insurance Association - More >>

January 2015 - Joyce Gordon Presents to the Senate Committee on Human Rights - Genetic Fairness - Click here for more >>

December 2014: Canada needs genetic fairness legislation President and CEO Joyce Gordon made a presentation on December 10, 2014 to the Senate Standing Committee on Human Rights on Bill S-201, An Act to prohibit and prevent genetic discrimination. Along with several others, Gordon testified on behalf of those with Parkinson's disease and other neurological conditions, in favour of genetic fairness legislation. More >>

December 2014 - Getting the Parkinson's Voice at the Dementia Table - Parkinson Canada is working to achieve positive change for people living with Parkinson's disease and dementia as it is an issue that affects many in our community. More >>

November 2014 - New video featuring Canadians living with neurological conditions - Alex Noble, an 80-year-old man living with Parkinson's disease for more than 11 years, is one of the inspiring Canadians featured in Neurological Health Charities Canada's new video, stemming from the release of the National Population Health Study of Neurological Conditions. More >>

September 2014 - Canadian study of neurological conditions provides new vital information on the impact of Parkinson's disease - More >>

August 2014 - Parkinson Canada makes federal pre-budget submission to support Canadians with Parkinson's

Parkinson Canada is pleased to share our Pre-Budget Submission, submitted to the Government of Canada's Standing Committee on Finance to support the development of the 2015 Federal Budget. Parkinson Canada made two recommendations – expansion of EI Compassionate Care Benefits and genetic fairness legislation – to better support Canadians affected by Parkinson's. More >>

April 2014 - On April 1st, volunteers and staff representing Parkinson Canada were in Ottawa meeting with federal officials to kick off Parkinson's Awareness Month. More >>

February 2014 - Parkinson Canada is pleased to announce Bill S-201, An Act to prohibit and prevent genetic discrimination, reached second reading in the Senate. More >>

February 2014 - Request for Personal Stories: Parkinson Canada is asking our community to share their personal story of how they have been affected by genetic discrimination. More >>

October 2013 - World Parkinson Congress Policy Forum
Parkinson Canada was proud to kick off the 2013 World Parkinson Congress (WPC) by leading the inaugural WPC Policy Forum from September 30 – October 1, 2013 in Montreal. More >>

October 2013: Genetic Fairness for Canadians Takes a Big Leap Forward. Parkinson Canada would like to commend our community's ongoing efforts to ensure our elected officials understand the importance of genetic fairness in Canada. More >>

October 2013 - CETA Encourages Research Investment In Canada. In November 2011, Parkinson Canada submitted a letter of support to the Minister of International Trade during the government's negotiations for CETA. More >>

September 2013 - Parkinson Canada Supports the AllTrials Campaign. Parkinson Canada recognizes the importance of transparency and unrestricted access to clinical trial results. We are pleased to sign the AllTrials petition and support this important initiative. More >>

September 2013 - Patient Evidence Submission – NEUPRO® With the support of our regional partners, we are pleased to report more than 600 members of the Canadian Parkinson's community participated in the online survey to better understand the perceived need for access to the drug NEUPRO®. The high number of responses provided excellent support with our Patient Evidence Submission to the Canadian Agency for Drugs and Technologies in Health (CADTH), submitted in August 2013. More >>

April 2013 - The Honourable Senator Judith Seidman read a statement in the Senate in honour of Parkinson's Awareness Month.

April 2012 - Parkinson's issues well represented in front of federal health committee. Read the recent update in e-ParkinsonPost.

January 1, 2012 - Health insurance and ‘genetic discrimination': Are rules needed?

November 2011 - NHCC submitted a brief outlining the elements of a National Brain Strategy, to the Senate Committee (Social Affairs, Science and Technology) responsible for making recommendations on Canada's current Health Accord.

November 2011 - Genetic Fairness update

October 2011 - Parkinson Canada submitted a brief to the federal Health Committee to provide information for their study on Aging and Chronic Conditions and to ensure Parkinson's disease remains a priority with federal decision makers.

April 8, 2011 - Parkinson Canada is committed to a National Brain Strategy. Take action today and make your voice heard. Keep Parkinson's and the need for a national brain strategy top of mind among the Federal parties. Download your 2011 Federal Election Advocacy kit (PDF).

April 4, 2011 - The NHCC has been working to identify priority issues to gain support for a national brain strategy. Read more in the latest issue of Brain Matters (PDF).

March 22, 2011 - Download the Your Brain supplement - National Post (PDF)

March 1 and 2, 2011 - On Tuesday March 1 and Wednesday March 2, Parkinson Canada participated in the NHCC/Public Health Agency of Canada progress and update meeting for the National Population Health Study of Neurological Conditions. Three national surveys and 10 research projects are underway. Research teams gathered with stakeholders, federal health portfolio staff and NHCC representatives to present research plans and collaborate.

March 1, 2011 - The NHCC and Parkinson Canada welcomed Ontario Minister of Health and Long Term Care, the Honourable Deb Matthews, along with three hundred guests at "BrainWave", a celebratory dinner. View pictures of the event.