Studies Seeking Participants


Biomedical technology for individuals with Parkinson’s disease

Researchers at Simon Fraser University are inviting people with Parkinson’s disease to participate in a research study to examine the effect of Galvanic Vestibular Stimulation (GVS) on gait.GVS is a process of sending specific electric messages to a nerve in the ear, by placing non-invasive electrodes behind the ear.Electroencephalography (EEG), Electromyography (EMG), accelerometry, and simulated walking environment system will be used for data collection.

Click here for one-page summary of the study.

Requirements include:

  • Resident of Metro Vancouver area
  • Age between 35-85 years
  • Diagnosed with Parkinson’s disease or Parkinsonism

Study will run for approximately 2 hours and participant will receive $25 for time compensation.

If you are interested, please contact:

Eunice Kuatsjah
ekuatsja@sfu.ca
(778) 385-6810

Bubblepreet Randhawa
bubblepreet_randhawa@sfu.ca
(778) 782-9098


How to Support Family Caregivers in the Context of Legal Assisted-Dying

You are invited to participate in a study entitled “How to Support Family Caregivers in the Context of Legal Assisted-Dying.”

Who we are:

We are a team of four researchers from the University of Toronto – two are student occupational therapists and two are professors at the university.

Why we are doing this:

Assisted dying is now an option for end-of-life care in Canada. The change in the law is intended to offer more options, but it may also make some people feel more concerned. There are checks and balances in place to try to prevent any improper use of assisted dying and to promote the voluntary capable decisions made by the individual who is seeking to avoid further suffering.

While some researchers have examined family caregivers’ support of assisted dying, little knowledge exists on the attitudes and perspectives of family caregivers regarding this issue, and no studies in Canada known to date. The purpose of this study is to gain further insight into the attitudes, perspectives and experiences of family caregivers now that assisted dying is a legal option.

The findings of this study will hopefully lead to recommendations for supporting both patients and caregivers during the dying process in this new legal context so that their goals of care can be fulfilled as they wish.

What we’re asking:

This study asks for your thoughts on the how the legalization of assisted dying affects your role as a family caregiver for someone who is facing death and may or may not be considering a legal request for assisted dying, the impact of these roles on your health and well-being, as well as your potential needs for support from the healthcare and social systems.

Who we’re asking:

We are asking family caregivers whose care recipients are considering end-of-life options because they have a grievous and irremediable condition that causes intolerable suffering. The individual must be eligible for health services in Canada. They do not need to be an adult or capable of their own treatment decisions for you to participate in this study, but this is required under the current law in Canada.

How we’re asking:

We are using a survey system called Survey Monkey. The survey asks for no identifying information from you – only some general demographics. We ask that you take care not to include any identifying details in the open comments sections. If any identifying details are included, we will omit them from any reports/publications/ presentations about this study.

The survey will be open until the end of March 2017. If you wish to withdraw from the survey once you have started it, you can simply click 'discard' at any time - this will remove any responses you have entered. Once you click 'submit', your responses cannot be removed.

You have the option to complete a telephone interview in place of the survey, or in addition to it. We will need to arrange to contact you for the interview, but will delete your contact details once the interview is complete. We will record the interview anonymously – without any identifying details – so that we can transcribe it and add the responses to the survey responses. We will ask you at the end of the interview if you still feel you wish your responses to be included – you can then ask to have it deleted if you wish for any reason. The interview recording will be kept for transcription and then deleted. As we will not have any way to identify each recording, or the transcripts, there will be no way to delete it once it is added to the other responses.

To go to the survey, you can click on the web link below:

https://www.surveymonkey.com/r/MAIDfamilycaregivers 

 

For more information, please click here.


Examining the Prevalence and Associations of Health and Mobility in Canadians

Click here for one page summary

Here is a chance to participate in a study funded by the University of Waterloo International Research and Partnership Grant to examine the effects of health on mobility among Canadians.  The aim is to determine how health as well as physical, cognitive and social factors influence injury rates including driving and fall related accidents. Findings from this project will lead to program and service development that address the needs of Canadians as they age. Follow up studies will be done in 5 year intervals to see how health, mobility, driving practices, the environment, activity levels and cognitive function have changed.  Comparing data every 5 years will result in greater understanding of health and mobility trends among an aging population. For additional insight findings from this study will be compared to residents of France, who have completed the same survey. 

Requirements include:

  • Over 45 years of age
  • Complete a 90 question online survey about your health, attitudes and behaviours, mobility, social demographic factors, driving, falls and a few questions on memory, sleepiness and distraction

To complete the survey in English, please click on:
https://www.surveymonkey.com/r/canadian_health_mobility_survey_eng 

Pour l’enquête en Français, vous pouvez suivre le lien ci-dessous: https://fr.surveymonkey.com/r/canadien_sante_mobilite_enquete_fr 

Facebook Page: 
https://www.facebook.com/CanadianInjuryPreventionSurvey/

For any questions you may contact Sarah Laberge at 519-878-1637, email selaberg@uwaterloo.ca, or the Principal Investigator Dr. Alexander Crizzle at 306-966-2773, email alex.crizzle@usask.ca.


Caffeine habits, smell-ability and Parkinson’s disease

A researcher at Dalhousie University/Nova Scotia Health Authority is recruiting participants for a mail-in study of the role of caffeine in altering smell ability and triggering Parkinson’s disease in people who may or may not have first-degree relatives with Parkinson’s disease.

Requirements include:

  • 40-64 years of age
  • Reasonably good physical health
  • Have a Canadian postal address
  • Have a valid email account
  • People who have, or do not have, family members with Parkinson’s disease.

Interested? Contact: pdadstudy@gmail.com or call 902-473-3147.


Music therapy research study for individual’s with Parkinson’s disease

Researchers at Western University in London, Ontario, need participants for a study to examine the effectiveness of a Home-based music therapy program to improve waling in Parkinson’s disease.

Participants will:

  • Attend 3 to 5 testing sessions at Western University (Elborn College, Room 1545 – free parking) to clinically assess both your gait and ability to perceive a beat.
  • Participate in weekly music therapy sessions where you will be asked to make music using an electronic drum set (provided) with an Accredited Music Therapist. (No music experience required.)

Requirements include:

  • A clinical diagnosis of Parkinson’s disease
  • 50 years of age or older
  • Have little or no musical training.

Interested? Demian Kogutek at: dkogutek@uwo.ca or Dr. Jeffrey Holmes at: jeff.holmes@uwo.ca or call 519-661-2111, ext. 88967.


S4 Study

S4 is an observational clinical study conducted by the University Health Network in Toronto, which aims to better understand the progression of Parkinson’s disease (PD) by measuring biomarkers. One of the most promising biomarkers of PD is alpha-synuclein – a protein that aggregates in the brains of people with PD. Alpha-synuclein can also be measured in many bodily fluids and tissues, giving researchers and clinicians a way to potentially monitor changes in the disease by tracking alpha-synuclein levels outside of the brain. The goal of S4 is to identify the best biofluid(s) and tissue(s) for measuring alpha-synuclein outside of the brain as a potential biomarker in people with PD.

S4 is an observational study, so study participants will not receive an experimental drug or treatment. Participants will first undergo a brain imaging scan completed at a collaborating site in Buffalo to determine eligibility, and then undergo the following biologic collection in Toronto: Whole blood, serum, plasma, cerebrospinal fluid and saliva samples, as well as colonic biopsy, skin punch biopsy, and salivary gland biopsy

Requirements include:

  • PD patients over the age of 40
  • Healthy controls over the age of 50.

Interested? For more information, please contact Brandon (study coordinator) at: 416-603-5800, ext. 3120.


Learning from each other: Best practices in hiring and retaining people with episodic conditions

A team of community-based researchers are conducting a study on the experiences of people living with health conditions with unpredictable periods of health and illness. The information will be used to develop resources to improve employment opportunities for people with episodic conditions.

People living with episodic conditions are invited to complete an online survey and share their experiences.
Interested? The survey can be accessed until December 31, 2016 at:

https://www.surveymonkey.com/r/epidis2016. For more information, contact: Wendy Porch at wporch@hivandrehab.com or Adele Furrie at adfurrie@rogers.com.


Research study examining patient-family doctor interactions: Parkinson's disease and multiple sclerosis

Residents in Kingston, Ontario are cordially invited to participate in a research study in which a research team at Queen's University will explore specific issues that arise in interactions between patients with multiple sclerosis (MS) and Parkinson’s disease (PD) and their primary care providers. This study is aimed at better understanding these interactions as a first step in better management, increased quality of life, and lowered costs of care. It is also a first step of a research program to design programs and tools for people with MS and PD and their family doctors to enhance effective interactions.

It is estimated that overall the study will take about 2 hours of your time. Compensation is available.

Click here for more information on eligibility requirements and compensation details.

Interested individuals can contact the research team directly via Dr. Setareh Ghahari at: healthaccess@queensu.ca or call 613-533-6789.


Parkinson Canada does not have the resources to screen or evaluate the background, ethics or intent involved in this research proposal. We neither encourages nor discourages involvement in this project; however, we want to be sure that people with Parkinson's have the information they need to make an informed decision. Therefore, we share this information with the understanding that Parkinson Canada assumes no liability for providing access to information and—if you are interested—encourages you to review the request and ensure that it will work for you, in consultation with your health care team, before proceeding to contact the research group.


Would you like to Train your Brain?

We are seeking individuals diagnosed with Parkinson's as well as healthy individuals: Click here


Toronto Western Hospital has a variety of ongoing studies. If you are interested in participating in clinical trials please contact Julie So at 416-603-5875 ext. 3

Toronto Western Hospital is conducting a clinical study investigating visual hallucinations in PD patients. For more information, please click here.


Dalhousie University - with first degree relative
Dalhousie University - without first degree relative

NoMoFA Study (Non Motor Fluctuation Assessment)

  • Do you have Parkinson’s Disease?
  • Are you currently taking L-dopa medication?
  • Do you feel your Parkinson’s medications wearing off?
  • Does how you feel throughout the day both physically and mentally change in response to your medications?

Click for more information.


Famotidine for the treatment of levodopa-induced dyskinesia: An "N-of-1" Study

Participants needed for a study on a new drug aimed at reducing dyskenesia.

Click here for more information.