Through our partnership with Neurological Health Charities Canada (NHCC), a coalition that's grown to 26 organizations strong, and as one of the founding members, Parkinson Society Canada is making great strides in bringing brain health to the attention of decision makers and funders.
November 2013: Have Your Say: Input Needed from the PD Community by December 2. The National Population Health Study of Neurological Conditions (NPHSNC) is nearing completion, and stakeholders are being consulted once again for their input. More >>
Genetic Fairness for Canadians Takes a Big Leap Forward. Parkinson Society Canada would like to commend our community’s ongoing efforts to ensure our elected officials understand the importance of genetic fairness in Canada. More >>
October 2013: Genetic Fairness for Canadians Takes a Big Leap Forward. Parkinson Society Canada would like to commend our community’s ongoing efforts to ensure our elected officials understand the importance of genetic fairness in Canada. More >>
October 2013: CETA Encourages Research Investment In Canada. In November 2011, Parkinson Society Canada submitted a letter of support to the Minister of International Trade during the government’s negotiations for CETA. More >>
September 2013: Parkinson Society Canada Supports the AllTrials Campaign. Parkinson Society Canada recognizes the importance of transparency and unrestricted access to clinical trial results. We are pleased to sign the AllTrials petition and support this important initiative. More >>
September 2013: Patient Evidence Submission – NEUPRO® With the support of our regional partners, we are pleased to report more than 600 members of the Canadian Parkinson’s community participated in the online survey to better understand the perceived need for access to the drug NEUPRO®. The high number of responses provided excellent support with our Patient Evidence Submission to the Canadian Agency for Drugs and Technologies in Health (CADTH), submitted in August 2013. More >>
August 2013: Genetic Fairness Update - Parkinson Society Canada and the Canadian Coalition for Genetic Fairness are calling again for your help to ensure that the Government of Canada puts an end to genetic discrimination. Write to your Senator asking them to support Bill S-218. More >>
May 2013: CALL TO ACTION! Address the funding cuts to Centre for Movement Disorders in Markham, Ontario, by participating in our letter-writing campaign to the government, calling for a Movement Disorder Strategy in Ontario. More >>
April 2013: The Honourable Senator Judith Seidman read a statement in the Senate in honour of Parkinson's Awareness Month.
April 2013: Have your say today: Parkinson Society Canada is conducting a patient and caregiver survey until April 21st to better understand the perceived need and desire for the Parkinson’s drug called NEUPRO®
November 2012: Call to Action: Did you know Canada is the only G8 country that does not have legislation to protect its citizens from genetic discrimination? Please join Parkinson Society Canada and the Canadian Coalition for Genetic Fairness in establishing genetic fairness legislation in Canada.
April 2012 - Parkinson’s issues well represented in front of federal health committee. Read the recent update in e-ParkinsonPost.
January 1, 2012 - Health insurance and ‘genetic discrimination’: Are rules needed?
December 13, 2011 - Parkinson Societies in Ontario made a presentation at a pre-budget consultation meeting to Ontario’s Minister of Finance, the Honourable Dwight Duncan. A submission to Ontario’s Finance Minister in support of this presentation was made in January 2012.
November 2011 - NHCC submitted a brief outlining the elements of a National Brain Strategy, to the Senate Committee (Social Affairs, Science and Technology) responsible for making recommendations on Canada’s current Health Accord.
November 2011 - Genetic Fairness update
October 2011 - Parkinson Society Canada submitted a brief to the federal Health Committee to provide information for their study on Aging and Chronic Conditions and to ensure Parkinson’s disease remains a priority with federal decision makers.
May 2011 - Parkinson's Advocacy in Ontario newsletter
April 8, 2011 - Parkinson Society Canada is committed to a National Brain Strategy. Take action today and make your voice heard. Keep Parkinson's and the need for a national brain strategy top of mind among the Federal parties. Download your 2011 Federal Election Advocacy kit (PDF).