UPDATE: Genetic discrimination
On June 10, 2010, the US Food and Drug Administration sent regulatory letters to five direct-to-consumer genetic testing companies requesting that they obtain FDA approval or clearance for their tests. The companies are: 23andMe, deCODE Genetics, Illumina Inc., Navigenics and Knome. |
Celebrating people who make a difference
Nominations for the 2010 Parkinson Society Canada
Volunteer Awards are due by September 17, 2010.
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The Donald Calne Lectureship | May 16, 2010 | Ottawa, Canada
Parkinson Society Canada is pleased to announce the award of the seventh annual Donald Calne Lectureship. More » |
Are you newly diagnosed with Parkinson’s disease? We’d like to hear about your experience so others may benefit. More »
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The Globe and Mail profiled Adele Gould and her inspirational story about facing the realities of living with Parkinson’s disease.
Read My Life with Parkinson’s.
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Class actions are proceeding in Canada on several dopamine agonists: Permax, Mirapex and Requip. If you have taken these medications for Parkinson’s symptoms, information can be found at www.thomsonrogers.com/permax.
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Parkinson's disease and genetic discrimination
 (WINNIPEG) February 25, 2010 — Canadian Coalition for Genetic Fairness spokespersons were on hand today to support NDP MP Judy Wasylycia-Leis as she announced she will be tabling a bill to protect Canadians against genetic discrimination.
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Parkinson Society Canada has joined the Canadian Coalition for Genetic Fairness. Huntington Society Canada is spearheading this Coalition to introduce legislation to prevent genetic information from being factored into decisions impacting a person's life (e.g., employment/hiring practices, life insurance, mortgage eligibility, health and disability insurance).
We would like to hear from you if you have been denied employment, insurance coverage or benefits based on your genetics or family history in developing Parknson's disease (or a related condition). Please send your story to general.info@parkinson.ca. Confidentiality is protected and the examples will be summarized anonymously. Thank you. |
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